Grayson Naff, 8, is preparing for life without vision. The Ohio second-grader was diagnosed last year with Batten disease, a rare genetic disorder that causes vision loss, seizures, cognitive decline, ...
crf 250L - Honda hoonings! An old fashioned Vlog for a change, a chance for me to test out some new kit and get a few whinges ...
For the three out of every 100,000 children who are born with Batten disease, the diagnosis is one of the most devastating that a family can receive. Emily Blackburn, 32, found out in March 2023 that ...