A rare disease took her sister. Now, a Burleson mom is helping search for a cure

Alström syndrome affects roughly one in 500,000 people. In May, Fort Worth will host a symposium of researchers looking into treatments.
Yahoo

Baby Born with Rare Syndrome That Doesn’t Allow Her To Close Her Eyes

A newborn in Minnesota has been a fighter since before she entered the world. Little Hazel has hydrocephalus, a condition that doesn’t allow her brain to drain fluid properly. When the baby was born, ...
IFLScience

600-Year-Old Knight Diagnosed With Rare Crouzon Syndrome In First-Of-A-Kind Discovery

In 1174, Alfonso VIII of Castile ceded the castle of Zorita de los Canes in Guadalajara to the order so it could protect the ...

Teen with rare syndrome to receive custom shoes

A 13-year-old girl with a rare genetic condition will receive custom-made shoes next month in Detroit after a nonprofit ...
Johns Hopkins Medicine

Running the Distance: Patient Teams with Johns Hopkins Medicine Dermatologists to Treat, Understand Rare Hereditary Cancer Syndrome

Jeffrey Ellin, a 46-year-old Baltimore resident and an avid long-distance runner, brought himself to the Levi Watkins, Jr., M.D., Outpatient Center in February 2020 with a small cosmetic complaint ...

Woman, 21, faces losing her bladder after dismissing condition as UTI

Woman, 21, faces losing her bladder after dismissing rare condition as UTI - Caris Gibson was diagnosed with the rare urinary retention condition, Fowler’s Syndrome, in 2025 ...