I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...
mRNA therapy would deliver a new, correct copy of CFTR mRNA to cells, allowing them to produce healthy CFTR protein. This treatment would not affect a person’s DNA or CFTR mutations. mRNA therapy is ...
I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...
Help support Cystic Fibrosis Foundation today! Cystic Fibrosis Foundation is currently addressing a matter that temporarily affects our ability to accept payments from California residents, related to ...
After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point — turning my struggle into resilience and my passion into purpose.
When you reach middle age, you start to realize that your body is beginning to break down. You wake up with a pain somewhere for no apparent reason that was never there before. You just don’t seem to ...
For families living with cystic fibrosis, access to medication is not optional. Access is survival. In September 2024, my then 29-year-old son, Nathan, stood frozen at the pharmacy counter. According ...
Why Join an Xtreme Hike? We will take care of the logistics so you can focus on the challenge, the scenery, and the mission. Direct support from CF Foundation chapter staff and volunteer leaders.
As part of our mission to cure cystic fibrosis and ensure all people with CF can lead long, fulfilling lives, we support global research and clinical trials that could help bring novel therapies to ...
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