There are 250,000 people living with Duchenne muscular dystrophy around the world, including 2,500 in the UK. Today on World Duchenne Awareness Day support families affected by Duchenne muscular dystrophy by sharing red balloons across social media. Find out more about Duchenne musuclar dystrophy >> http://qoo.ly/hkkdc. | Muscular Dystrophy UK
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No parent should ever have to hear the words “Duchenne Muscular Dystrophy” — especially when there’s no medication available. One mountain after another, just to reach the hope of treatment. 💔 9 months in, and the fundraising is still going strong — all to give Archie the best life possible. 💙 Another day, another step — Chris is still running the length of the UK for Archie. Let’s keep the momentum going. 🔗 Link in bio #duchenne #treatment #fy #fyp #mammysboy @getbetterwithchris | Archies Jo
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💡 What does “severe phenotype” mean in Duchenne muscular dystrophy (DMD)? When doctors talk about a phenotype, they’re referring to the way a condition shows up in someone’s body, the physical traits and symptoms that result from their genetics. In Duchenne, a severe phenotype usually means the condition progresses more quickly, often with earlier loss of abilities like walking, climbing stairs, or raising arms. This can also bring earlier complications with breathing, heart health, and other a
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"The GPs unfortunately don't have enough knowledge about Duchenne." Satish's son Vinny lives with Duchenne muscular dystrophy. Together, they've felt the impact of a lack of understanding about the condition across healthcare professionals. This includes poor communication between hospitals and GPs, medical equipment not suitable for Vinny's wheelchair, and inaccessible transport between appointments. Learn more about Satish & Vinny's story 👇 | Muscular Dystrophy UK
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